Rainbow Trust Family Support Workers provide emotional and practical support to families that have a child suffering from a life threatening or terminal illness. They provide access to healthcare, education, therapy, welfare support and benefits for these families at the most traumatic time of their lives together with emotional support for the whole family.
The pressures on a family with a seriously ill child are extreme. Siblings often feel left out and neglected as the attention of their parents, family and friends focuses on their sick brother or sister. They often believe they have done something bad to cause this imbalance and feel frightened about what is happening around them and of what the future holds. They can become angry, withdrawn and resentful and school work can be severely disrupted.
Rainbow Trust's regional Family Support Workers provide bespoke care to all family members in their own homes through diagnosis, treatment and beyond bereavement where necessary, ensuring they have someone to rely on for as long as they need it.
Rainbow Trust provides emotional and practical support to 1,900 families per year - supporting not just the sick child but also the healthy siblings, parents, carers and grandparents.