Hearts of Epilepsy Foundation is a registered 501(c)(3) non-profit organization dedicated to providing effective tools and programs to improve the quality of life for children and families living with epilepsy. As your Advocate, we developed a deep appreciation for the need for further ongoing collaboration to address epilepsy and specific needs within our community. We've learned that many who are living with epilepsy, lives are impacted by various aspects; involving the fear of seizures, the dangerous side effects, which can lead a person to abandon normal activities; such as, cooking, cleaning, or pursuing long-term goals. Use of life-management, such as living day-to-day life is always a journey. Learning to live a normal life with epilepsy can be a struggle, but with the right treatments and care, it doesn't have to control your life. Epilepsy affects more than three million Americans directly, and sixty-five million worldwide.
Epilepsy is one of the most common neurological disorders of childhood. However, in America, as well as in most of other developing countries, little attention has been paid to improve the public knowledge regarding epilepsy. Currently public attitude toward epilepsy is rather negative, full of prejudices and bias. Children with epilepsy in the United States still find themselves confronted with social barriers that prevent them from academic achievements; in addition to current limitations.
Epilepsy Early Education & Awareness Project will conduct a simplified approach to educate and provide our student with the basic knowledge about epilepsy. This program will provide self administered questionnaires, seminars, and other educational resources. The approach will contained questions relating to epilepsy awareness, attitudes, and first-aid management of seizures. This Project will improve the knowledge, attitude, and practice of epilepsy education within our schools.
A general public education campaign for epilepsy and the need to address and correct the existing biases are necessary to improve the quality of life of children with epilepsy in the United States. This Project will change the way the student body perceives epilepsy as a whole.